Saturday's Providence Water Run in Spring Grove to benefit little girl with rare disorder


More than 100 runners are expected to take to the streets of Spring Grove on Saturday to benefit a local family, whose daughter is undergoing treatment for a rare chromosome disorder and spina bifida.

Half-way through their pregnancy, first-time parents Krista and Matt Robinson found out during an ultra-sound that their daughter, Amaya Elise, had spina bifida. A few weeks later, it was confirmed that she also had a very rare chromosome disorder abnormality called tetraploidy. The parents were warned that their daughter would likely not make it to full term and was "incompatible with life."

They continued with the pregnancy and, today, Amaya is six months old after defying the odds and spending four months in the care of the Children's Hospital of Philadelphia. She is only the 15th person recorded to have lived with tetraploidy.

Providence Community Church, which celebrates in Spring Grove, is hosting a benefit Providence Water Run at 8 a.m. Saturday at Spring Grove High School. All proceeds from the 5K run and one mile fun run will benefit the treatment of Amaya and the financial burden on her family.

The event will take runners through the campus of Spring Grove High School while running through a variety of waterfalls and dodging blasts of water from spectators. Registration for both the 5K race and one mile fun run is still open and can be made at

More information is available by visiting or by emailing