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Friendship Elementary students raising funds for peer

To support the Myers family visit youcaring.com.

Jessica Schladebeck
Friendship Elementary third-grader Zachary Myers works in his classroom recently.

Staff and students at Friendship Elementary School have been hosting events and raising funds for a student who has a rare, genetic connective tissue disease. 

Third-grader Zachery Myers has been diagnosed with a condition called Epidermolysis Bullosa or EB — also known as Butterfly Children Disease — which causes his skin to be extremely fragile, blister and often become infected. Approximately 200 children a year a diagnosed with EB, and there is no known cure for the disease.

While Zachery has been "Hulk strong," according to his parents, classmates and teachers, he does feel as though he is the only one who has to battle EB. So, this summer his parents are planning to take him to a conference in Texas where he can meet others who are living with EB, just like he is.

The 2016 DEBRA Care Conference, which runs from July 24-27, will not only connect Zachery with others living with EB but offer education to his parents and nurse as well. Top medical professionals will also be available to share EB care tips and information about research, and the Myerses will be able to learn about new products and treatments for the disease.

The Southern York County elementary school has been hard at work raising funds to help the Myers family with the cost of the trip, as well as other expenses associated with EB treatment.

“The fundraising is amazing and a really big help for our family,” his mother, Chrissy Wingler, said, noting this will be the first time the family is able to attend the conference.

The Friendship Elementary PTO on Friday hosted a Winter Carnival, and a portion of the proceeds will benefit the Myers family. The event included a Chili Cook Off, Pie a Teacher, raffle sales, a book sale and food sales, according to a press release.

In addition, the school is selling Hulk Strong T-shirts and Easter candy, and there is a spaghetti dinner scheduled for May 21 at Immanuel United Methodist Church in Glen Rock to benefit the Myers family. 

The district has also launched a youcaring campaign an online crowd sourcing fundraiser — which on Friday had already raised nearly $4,000.

“The outreach from the Southern York County School District, including the Friendship family, staff and students fills my heart with pride," said Friendship Elementary Principal Beth Koontz in the news release.

Visit www.youcaring.com and search for Zach Myers to donate to the online fundraiser.

— Reach Jessica Schladebeck at jschladebeck@yorkdispatch.com.